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Author Archive | Laura

International-Angelman-Day

Loving someone rare

What is Angelman Syndrome? Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Angelman syndrome is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome […]

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The-best-gift-I-never-wanted

The best gift I never wanted

Two years ago this month, we received a call that changed our lives. After months of failed milestones and a barrage of testing, our fears and worry over our baby girl’s health received a name: Angelman Syndrome. Learning your child’s future is far from what you hoped is really hard. We cried, and we grieved. […]

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im-that-mom-posting-ponies-and-rainbows-on-social-media-but-this-is-whats-really-going-on2

I’m that mom posting ponies and rainbows on social media, but what was ACTUALLY happening?

  A couple weeks ago, I was that mom. The one filling your news feed with cute kid pictures, celebration (ala the world series), and general happiness…while actually having the worst week EVER. Now that the election is over, I think a lot of us are WISHING for more ponies and rainbows on Facebook. Today one of my […]

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