Tag Archives | special needs

our cranio story

Lucky To Live in Orlando: Our Craniosynostosis Story

I have never been happier to be an Orlando resident than when my sweet two-week-old baby was diagnosed with sagittal craniosynostosis.  It was a normal day for our new family of four, which of course means we were running late for my newborn’s checkup at the pediatrician’s office. These visits were mostly formalities in my […]

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International-Angelman-Day

Loving someone rare

What is Angelman Syndrome? Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Angelman syndrome is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome […]

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When-I...Just.-Can't.-Even.-Anymore2

When I…Just. Can’t. Even. Anymore.

Let me clarify…I have a toddler. I could literally end this post now, because if you have a toddler, or have been through this weird twilight zone then you know what I’m talking about. Our daughter is three, and right in the thick of testing every single boundary possible. From wanting to sit on the potty, […]

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That-was-not-how-I-envisioned-my-first-week-of-motherhood-going2

That was not how I envisioned my first week of motherhood going

Before we adopted our daughter Reagan, I remember asking my husband, “But what if she has special needs?” There was fear in my voice because I thought I couldn’t handle having a child with special needs. And in trying to calm my fears, he’d say, “All kids have special needs, Anne-Marie,” meaning that parenting is […]

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